tag:blogger.com,1999:blog-3826301325937446472.post8940467076617530665..comments2023-11-05T02:15:24.773-08:00Comments on Stopping Topical Steroids : 2nd Injection & Fear Tracy Shttp://www.blogger.com/profile/07818322348164366661noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-3826301325937446472.post-35326417369092552572013-12-10T10:32:06.627-08:002013-12-10T10:32:06.627-08:00Hi Elaine! Thank you for reading my blog! I am h...Hi Elaine! Thank you for reading my blog! I am hoping I can somehow help others get through this very tough journey! I know many people who have taken or are on ciclo....I decided against it because I had liver damage from the TS and knew ciclo would affect my liver negatively and I just didn't want to go down that road. I do know it has helped a lot of people get their life back. Hoping you don't need to be on it too much longer! The dryness in MW is tough in the beginning. I am glad though that I did it....so much easier to deal with the dry skin than the wet, tearing easily skin! Keep on keeping on!!!!Tracy Shttps://www.blogger.com/profile/07818322348164366661noreply@blogger.comtag:blogger.com,1999:blog-3826301325937446472.post-56653360038811957342013-12-10T10:24:38.777-08:002013-12-10T10:24:38.777-08:00Lisa,
How are you doing???? I have missed you as...Lisa,<br /><br />How are you doing???? I have missed you as well. Praying you have not had too rough of a time lately....hoping you have just been busy! :) Let me know how you are doing....email me: tracyscarpulla@gmail.comTracy Shttps://www.blogger.com/profile/07818322348164366661noreply@blogger.comtag:blogger.com,1999:blog-3826301325937446472.post-63607259532749521592013-12-10T10:23:11.932-08:002013-12-10T10:23:11.932-08:00Hi jsan!! I have missed you! I have been so busy...Hi jsan!! I have missed you! I have been so busy with going back to work, I have failed to keep up with everyone! I am glad to hear from you and pray you are well! <br />Your combo sounds delicious!!! I may just try it! :)<br />I have been more positive than negative lately....really enjoying having my life back and not oozing and tearing my skin to shreds!! I especially liked the way my skin felt after the 2nd IV glutathione! I cannot believe how soft skin can feel!! Oy! I am so looking forward to Friday when I go again. :) I am very hopeful that it will give me the longer term effects of strength in my skin as it detoxifies each and every cell! Tracy Shttps://www.blogger.com/profile/07818322348164366661noreply@blogger.comtag:blogger.com,1999:blog-3826301325937446472.post-34004576733041782472013-12-10T10:15:37.898-08:002013-12-10T10:15:37.898-08:00Hi Dan,
I used to think stress brought on flares a...Hi Dan,<br />I used to think stress brought on flares and I think they do sometimes. But a few months ago after starting MW and the supplements I had my most stressful month ever with my husband being in an accident. But my skin only got better. So I'm just riding this good wave now and glad to be over the worst of TSW (at least for now). I needed to write this post because it is a reality of TSW. However I got over the fear in a few days and am now getting on with life. I find that if I write out my feelings, then I stop holding them in and letting them get the best of me. Writing this blog has been very therapeutic and I am so glad I I started it!<br />Tracy Shttps://www.blogger.com/profile/07818322348164366661noreply@blogger.comtag:blogger.com,1999:blog-3826301325937446472.post-29670901751639330742013-12-10T10:11:42.401-08:002013-12-10T10:11:42.401-08:00Thanks Louise....I have been getting out!!! :) I...Thanks Louise....I have been getting out!!! :) I know at 9 months after 30 years of use, I am no where near done, but praying that I don't get any worse. I can work and play with where I'm at now and have my life back! Hoping you are hanging in there ok! :)Tracy Shttps://www.blogger.com/profile/07818322348164366661noreply@blogger.comtag:blogger.com,1999:blog-3826301325937446472.post-37417328376691506092013-12-10T10:09:57.146-08:002013-12-10T10:09:57.146-08:00I did the warrior thing during my first 6 months -...I did the warrior thing during my first 6 months - I find I just don't have it in me right now to do that - going to just take it one day at a time for now....take whatever comes my way. :)Tracy Shttps://www.blogger.com/profile/07818322348164366661noreply@blogger.comtag:blogger.com,1999:blog-3826301325937446472.post-88941143668087877972013-12-09T04:23:59.473-08:002013-12-09T04:23:59.473-08:00Hi Tracy - I read your blog all the time but never...Hi Tracy - I read your blog all the time but never comment. Your advice / observations so far have been very useful. I know what you mean about the fear. I believe some of us end up with a sort of 'PTSD' after / during TSW. I ended up seeing a counselor, I was in such terrible fear of being plunged back into the inferno. I'm on ciclo now. Every time I have to go to the derm i can hardly breath with anxiety that he will make me come off the stuff and back I'll go into the flames. My face and neck are still horrid, despite the ciclo, but at least i can function and at a distance of 20 paces look almost normal (especially if the light is dim). Anyway, I just write to say I understand the fear... I also am trying MSM and MW... Face is less red, but dry dry dry.<br />Your blog is especially interesting as i am a 30+ years user too... keep on keeping on... I look forward to your picture updates. Its been great to see your amazing improvement.<br />E xxElainehttps://www.blogger.com/profile/18228462458812222431noreply@blogger.comtag:blogger.com,1999:blog-3826301325937446472.post-68607435366670082452013-12-07T18:06:21.343-08:002013-12-07T18:06:21.343-08:00Hi tracy!
Im super happy for you! Miss u.Hi tracy!<br />Im super happy for you! Miss u.Lisa Leunghttps://www.blogger.com/profile/03940546774122967042noreply@blogger.comtag:blogger.com,1999:blog-3826301325937446472.post-12070775421716095642013-12-07T15:07:08.338-08:002013-12-07T15:07:08.338-08:00First of all, Yey on having energy! Then the msm, ...First of all, Yey on having energy! Then the msm, I've been taking it since I started tsw in March and I never ever oozed. But I only take it in the morning. To sleep two hours before bedtime I take: 300mg magnesium citrate, an evening primrose oil, quercetin, a glass of red wine and some dark chocolate. Yes, chocolate the high grade kind, the touch of sugar helps cortisol overnight, and contrary to popular belief it's actually low in caffeine but contains sedatives similar to pot. This combo knocks me out cold every night. <br /><br />As for the nothing heals but time nonsense. It is so destructive. Yes we know time eventually heals, but we do not know that nothing else does. And never ever underestimate the power of the mind. Be positive, BELIEVE you are going to be just fine. Stat away from any negativity. If you like trust that god or angels are guiding you and protecting you and that this is it!! <br /><br />I went through two full withdrawals before this, never knowing that steroids had been the problem. On the one hand of course it's such a great thing to know what happened so I never use them again. On the otherhand ignorance was bliss. I never knew the horror stories of some withdrawals, "late stage flares" etc etc I just assumed I was detoxing and getting better and better. And I did. <br /><br />Have faith.jsanhttps://www.blogger.com/profile/14849732050452242351noreply@blogger.comtag:blogger.com,1999:blog-3826301325937446472.post-14010716513760103622013-12-06T07:43:02.951-08:002013-12-06T07:43:02.951-08:00Tracy, I just had my worst flare and have almost f...Tracy, I just had my worst flare and have almost fully recovered from it in just over one week, similar to my last flare. I attribute this to no moisturizing and my skin being stronger as a result. I strongly believe if you stick to not moisturizing you will be fine regardless.<br /><br />I also have been deeply disturbed by the mantra of "the only healer is the passage of time", as you may have seen in my posts. It's heart breaking to see the sense of hopelessness in people from this ill advised and misguided statement when I read their blogs. As I've said many times, hasn't anyone ever heard of the placebo effect? UGH!<br /><br />Anyway, don't worry about flares. They seem to be brought on by stress mostly so try and avoid it as much as possible. And, when you have a flare, just know your skin will heal again within a couple weeks. That is, as long as you stay off moisturizers of course.Danhttps://www.blogger.com/profile/08567005251093371248noreply@blogger.comtag:blogger.com,1999:blog-3826301325937446472.post-54235369811775716932013-12-06T02:48:42.553-08:002013-12-06T02:48:42.553-08:00Tracy. Just enjoy being well!!! Don't waste yo...Tracy. Just enjoy being well!!! Don't waste your time worrying over something that may not even happen! It's true, the late flares are a bummer, but we learn to ride the wave.<br /><br />Don't let fear cast a cloud over you when you are doing so well. Get out and have some fun!<br /><br />I am so happy for you and truly hope that you are done with TSW for good. XLouisehttps://www.blogger.com/profile/15469340247407868766noreply@blogger.comtag:blogger.com,1999:blog-3826301325937446472.post-44567303355320541252013-12-05T22:32:39.524-08:002013-12-05T22:32:39.524-08:00Can resonate with the fear part. I'm just over...Can resonate with the fear part. I'm just over 2 months in and while my skin is very manageable at the moment, there is always this fear of my skin regressing. Having lived through the rough stages previously, this is something that I don't wanna go through again. Perhaps a good thing to do now is to "warrior" myself and get myself mentally ready for the next big flare if it comes. <br />Lesliehttps://www.blogger.com/profile/17970574728799053025noreply@blogger.com