First off, I only post 2 posts in a day when something exciting happens!
Second, I want to apologize upfront to all my fellow bloggers and forums friends - I will be working the next 3 out of 4 days - all 12 hour shifts so I will be offline during that time I am sure. I may pop in here and there to read up on how you are all doing, but please forgive me for not writing back or leaving comments over this weekend! I love you all and want you to know I am keeping up with all of you! I will do my best to respond to private emails - but please forgive me if I don't make it there either - this will be a test of my return to work!
And third - the phone call that brightened my day...I got a call back from the ND's nurse as I called earlier today to ask for the genetic testing. Yep - have a script to go get it done at lab corp. I am without insurance for the next 4 weeks so I may or may not wait depending on the out of pocket cost. Anyway, I spoke with her about getting more glutathione as I was running low. I asked if I could take more than one a day - she said of course - some people take up to 6 a day. Then I asked about the IV form as I had read about it the other day. She said that was a good option for those who have taken a lot of medications over the years (hmmmm....like steroid creams???). She said it gives the body a great flushing of toxins and people feel really good after having them. They typically recommend those for people with the gene mutation and for those with a history of chronic fatigue and lyme disease. I was afraid to ask how much. But I was shocked (happily so) - $65 for the injection - takes all of 15 minutes total. So I gave it some serious thought given I have had these mini-flares. Nothing really - the worst was when my neck was red the other week. It's still pink but it is also still very sensitive - along with a few spots on my left arm. I am also having a hard time sleeping I think from coming down from the raw adrenal supplements. I will talk to my husband about it, but given the low cost (in my opinion of course), and the nagging few areas, I may just go for one injection just to see if it somehow improves my skin overall. Not holding out any hope as I am taking 4 supplements - but the glutathione is the end result - the one thing that the cells absolutely need to clean the cells of toxins. A boost may be what I personally need to get over the nagging neck. It sounds silly really as my skin is doing so very well, but honestly, my neck has been so sensitive for all 9 months of TSW and I really just want it to feel NORMAL! I know I am asking too much here given my 30+ year usage and only being at the 9 month mark. But if these supplements are the ticket for TSW then I would like to be more assured. I have already researched the possible side effects (none known - except a slight flushing during the injection only).
So if I do get it done, I will be going on Tuesday - when I go pick up the script for DNA testing. I will even bring my camera so I can show what I look like being a guinea pig! :) The nurse told me she does these every week - so not a true guinea pig - but I will look at it as my own personal experiment for TSW. For the weekend I will increase my oral dose to see if that makes a difference - if it does, then I will be even more convinced of getting the injection on Tuesday. I do NOT like needles and I hate taking pills - even supplements. I prefer to get things naturally. But given all the years of damage caused by steroid creams, I am taking this approach to help push my body in the right direction. As an ER nurse I put in a lot of IV's - I mean A LOT!! I tell people to suck it up all the time (especially the men with tattoos who cry that they hate needles). Yes, I am a mean nurse. :) But man I am stressing about a needle myself! Ha, I crack myself up!
OK, off to put laundry away and clean up dinner! Then I plan to take a melatonin for sleep tonight. Praying that helps!
Hi Tracy! Man the neck is the worst! I hate waking up to it weeping and not being able to go back to sleep because the air hurts soooo much!
ReplyDeleteI hope the melatonin worked for you and you got some rest. I have also stopped using moisturisers and finding the journey smoother already!
Love Ruby Red
http://rubyredandtsw.wordpress.com/
This is fascinating. You are great to suck it up & be the guinea pig for our cause. I will be checking back with you about your findings. Thanks for sharing & blessings to you Tracy!
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