Sunday, January 17, 2016

Doing Well, BUT....

OK, so I am well over  a week since needing a shot of steroids for my asthma - about 10 or 11 days.  A few days ago I had some dry itchy skin on my wrists and my first thought was oh no I'm going to flare!  But lo and behold it went away and was typical of my dry itchy skin I have had on and off this past year.  I have also been noticing my hives have not been bothering me - I used to get them daily since clearing up - so hives for well over a year was driving me mad.  But I was able to attribute most of them to food sensitivities.  If I ate dairy or gluten, I would get hives on my arms and chest like clockwork.

So overall my skin is doing what's up with the BUT???  Well, as I wrote before, my asthma has been getting progressively worse.  I have seen a few doctors and am on non-steroidal medications but they are not the answer obviously.  My goal is to be off all meds!  But breathing is important to life!  And I have tried my hardest to find triggers.  But lately almost every time I eat, I have an asthma attack.  Basically I eat about twice a day and that's it.  It's getting ridiculous.  To top it off I have become exhausted on a daily basis again - no where near as bad as when in TSW, but it's bad enough I only have a few hours a day where I feel like I can get anything done.  I'm sure it's from coughing half the night away.  Here's where I'm house has no basement, and no obvious mold problems, hardwoods throughout, 3 UV air cleaners, dust covers on mattress and pillows, dogs kept to one room or outside, and eating as clean and dairy/gluten free as possible.  Not sure what else to do except do a month long fast and go live in a bubble!  :)

In all seriousness though, I think I may have found a reason for my ongoing asthma.  It makes the most sense given how bad my symptoms are after eating.  I'm sure some of you have heard of leaky gut syndrome.  Either you think it's a definitive thing or believe it's quack science.  Either way I personally don't know enough nor have read enough of the science behind it to make a valid opinion.  But at the point I'm at, I'm willing to give the theory a go and make attempts to "heal my gut lining". This will be no easy task and requires me to be in the kitchen a bit more often - making bone broth and making fruit/veggie smoothies.  I already take probiotics, one of the main things for leaky gut.  And to be honest, I often sleep better when I take the probiotic at night (something I noticed twice last week).  There's so much more to this leaky gut thing and I need to do more research, but if our skin can turn into macerated flesh from the steroids, then it only makes sense our gut lining can do the same.

An FYI....the stuff I've been reading out there on leaky gut states it can cause allergies, asthma, skin conditions, auto-immune conditions and so forth - wondering if it's worth it for many of us in TSW to be more careful with what we eat.  Some say diet doesn't make a difference on their skin while others like me swear it makes a huge difference.  I think it's well worth looking into for overall health and well being, not just for our skin - and in my recent case of asthma.

Thursday, January 7, 2016

Taking Steroids!

This is not what I wanted to do I swear!  But 6 months of my asthma bugging me and then in the last 2 weeks I went through an entire rescue inhaler.  I couldn't sleep due to constant wheezing and I couldn't figure out what was triggering me.  My asthma has only gotten worse as my skin as improved since last year.  But it was manageable.  Last week I woke up at 3 am and couldn't move any air at all.  I used 3 rescue breaths but nothing at first and in a panic I went for my epi pen.  But before I was able to give myself the epi, I was able to take in a straw's amount of air so I hit my inhaler like 8 or 9 more times in 2 minutes.  I should have called 911 at that point and gone to the hospital but my kids and I are here by ourselves as my hubby is 12 hours away working in another state for another 2 months.  We just moved here and the only people I know are our neighbors.  I'm sure they would have helped without a doubt but I didn't want to wake them up at 3 am.  So I went to urgent care in the morning and received a shot of decadron.  Not happy about it but I had no choice.  So far my breathing has been better which is a wonderful feeling!

That leads me though to the question of the day....what is going to happen to my skin now?  I'm not on any taper of prednisone as the doctor said the decadron will stay in my system for about a week and eventually taper off on its own.  Many people have remarked how taking steroids even 3 or 4 years out has caused a rebound flare.  But I am not so worried given I fixed my TSW in a different way - by treating the underlining cause of poor healing - my methylation genetic mutations.  My plan is to now get back on those previous supplements I no longer needed (glutathione, MSM powder and so forth).  I still take my active B's about 2-3 times a week as required for producing adequate glutathione on a maintenance basis, but if there is going to be a rebound flare then my body will need extra glutathione for healing.

So I will keep you all posted.  I've been doing so good for so long now skin wise.  I'll hit my 3 year TSW mark on Valentine's Day next month.  Praying for better healing of my asthma and no flares!

Sunday, January 3, 2016

Finally settled at home!

The last few months of 2015 were beyond crazy - we had moved to Lexington, KY in August but due to problems with our new jobs we had to close up the house and go back to NY for 2 months to work to ensure finances were not too tight for the holidays.  Moving in itself was expensive so we just packed a few bags and ended up being split up.  Our kids stayed at my parents for 8 weeks in Rochester, I stayed at a friend's house in Albany and worked 2 months, and my hubby was in Binghamton sleeping in the truck (he refused to spend money on a hotel).   Anyway we were all about 2-3 hours away from each other and spent many hours on the road visiting each other.  We also got to spend some time visiting Christmas Village in PA and a few other sites.  It was stressful but not once did my skin act up!  However with that said I was still reacting to dairy and gluten - dry itchy skin on my arms and face and my asthma has kicked up to a whole new level.  Not sure why but I do notice I get difficulty breathing every time I was eating.

So that left hubby and I to make the decision for me to return to KY before Christmas (he came home for a week too) and to not work for at least 3 months.  I am spending this time on losing the weight I gained and get back to the all clean eating we were doing years ago.  No cheating, no excuses.  I seriously think my asthma is being triggered by a number of things but mostly the bad food I have been eating.  I am now on day 2 of my 100% clean eating.  Last week I spent cutting back and not buying any new bad food.  Also had to come off coffee for a a few weeks as my crutch is yummy sugary coffee creamer!

As for my skin, today its less itchy and I've had no hives for about a week.  I have not taken any antihistamines in about 4 or 5 days either and my itching continues to improve.  In the meantime I am reading up on all things regarding saving money and being more frugal.  I joined ibotta and I even joined Dietbet where you bet on yourself losing weight.  I joined one short term game and one 6 month game.  By putting down a few dollars I am now committed to sticking to my clean eating and losing this weight.  I am guaranteed all my money back as long as I lose the % of weight required.  I'm more determined than ever about getting my health back into tip top shape.

Praying everyone out there suffering can get some relief with this new year.  Keep reading and finding what will work for you!  Don't give up because life on the other side of TSW is AWESOME!