Saturday, June 14, 2014

16 months!

Tomorrow will mark my 16 month anniversary off of topical steroids.  I cannot believe that much time has passed!  I only have a minute here - hopefully I can catch up this blog over the next few weeks.  

Where have I been?  A few will be secretly hoping I had a major flare and am too embarrassed to come here and blog.  Sorry to disappoint, but that is not the case.  I wish I could say all is good.  Mostly good, but we have had a sad time in our family the last few weeks and have spent many days traveling out of town as a dear and close family member has passed.  I also went back to work full time about 3 weeks ago so I literally have had no time to return emails, get on forums, or write on my blog. I've popped on Facebook here and there but that is all.  A lot of things here at home have been neglected so now we are in the process of cleaning up around here after the last few weeks of things being thrown here and there.  

My skin??  Haven't had time to think about it - but for the most part considering the stress, it's not too bad.  I've had many mini-flares pop up almost daily.  It switches from my face to my neck to my low back to my inner arms.  I barely heal in one spot before another mini-flare comes on.  It doesn't stop me obviously from doing anything.  But a few days I've had to wear turtlenecks to work despite the heat because my neck was having a mini-flare.  I haven't gone for my IV glutathione in over a week due to everything going on, but still healing in certain areas.  My ankles look fabulous and am only dealing with one small sore on each ankle.  My hands are surviving working - no flares there - just some dry areas that I put waterproof tape on during work so they don't crack open.  So far so good.  My legs remain clear as does most of my torso except the neck and the left lower back that re-flared a few days ago.  

I have pictures on my camera I meant to post a few weeks ago - just not going to get to it just yet.  Need to do a massive grocery shopping and one of the girls has been having a massive growth spurt and has very few summer clothes that fit - so need to get her some clothes.  Working tomorrow and I think Tuesday and Wed.  Also need to get some things for the garden.  It's nice to be working again and having the money to buy the things we need.  Hope everyone is doing well.  I will do my best to get back to the emails and messages.  But please give me a bit more time so I can get life back to normal around here.  


  1. Glad to hear you're doing well!

  2. So sorry to hear of your loss! On a positive note, congratulations on returning to work - that is a big milestone right there :) - I am sure that no one is secretly hoping you had a flare, and if there is then shame on them, I wouldn't wish this on anyone. Its great that your skin is doing so well and you have time just to get on with things and be yourself. Take care, Louise x

    1. Agreed! No one going through this would wish a flare on another! I am back at work now quite solidly too, feels good. Hope your upper body clears soon :)

      Sorry to hear about your loss Tracy.