Sunday, August 31, 2014

My plan to complete healing...

I feel stuck...stuck in this cycle of mini-flares (small areas that itch, break open, scab over, and then eventually heal).  I have little to no oozing.  My fingers are still a mess but the swelling is gone as is the oozing.  They are just dry and cracked with blister-like open skin trying to heal.  I pretty much have my life back except for not being able to work due to the finger flare.  Over the last few months I noticed something - I am unable to live with this pretty decent skin without my MSM powder and glutathione.  3 times in the last 2 months I went more than 4 days without any of my supplements.  2 were for traveling and then this past week I did it due to my monthly and also to see if my assumptions were correct - that I'm not as close to healing as I thought I was a few months ago.  I have a much larger flare within 48 hours of stopping my supplements - notably the 2 mentioned above.  I stopped 4 days ago and since yesterday my itching has increased dramatically as well as my skin burning and breaking open in many areas - my chest, stomach, left elbow, forearms, neck, and face.  The other 2 flares were mostly face and neck and arms.  This was bigger but I am also lacking in sleep due to stopping my benadryl as well.

I am DONE!  Done with it all - all pharmaceuticals!!!!  I will use nothing but herbs from now on except for the MSM powder and glutathione - I will stop those once fully healed.  I am stopping my vitamins and supplements that are not pure herbs.  I am tired of putting things into my body that are not all natural.  Manufactured vitamin D and all those vitamins are manufactured and produced with chemicals.  I am on a mission to heal with food and herbs.  I am on a mission to fight the last of this TSW as naturally as possible!  No more tanning beds either!  No more sleep aids!  I have been dependent on Benadryl for years to get to sleep due to the chronic itch.  Well since my itching has been at its all time low I figured I would stop the Benadryl.  Now studies show that Benadryl is not addictive.  And that one stopping Benadryl does not suffer from withdrawal...I beg to differ!  I have tapered down from 50 mg a night to 25 mg every other night over the last few weeks.  Then 6 days or so ago I went cold turkey and let me just say it has not been fun!  My brain is wired until at least 4 am every night.  I am very anxious, and my restless legs have returned.  I also experienced bad headaches for 3 days.  Studies show that long term use of Benadryl can cause lowering of the blood pressure - so I assume stopping it causes high blood pressure temporarily (rebound effect) which would explain my headaches.  But this Benadryl experience really kicked off my mission here.  FDA approved or not, I will just not be using it.

Herbs on the other hand are God's medicine to us.  So starting tonight I will start back up on my herbal teas.  I had stopped drinking them out of laziness.  And I will start the cleansing program I had talked about before - a colon cleanse followed by an all body herbal cleanse.  I have used these products in the past and they were amazing - unfortunately at that time I was still using steroid creams.  So their effectiveness was hampered I believe.

But there is a catch - a pause if you will.  In the next 30-45 days we will more than likely be moving.  It is our dream to move to KY where we bought nearly 70 acres about 3-4 years ago.  We want to start our own farm.  Well building on the and proved difficult given the remoteness of the property and the upfront cost of building.  So a few weeks back I went on another road trip and looked at a few homes - one of them being only 11 miles away from our property.  My husband has dreams of building a home on our land someday and living so close by is as close to our dream as we can get right now.  It's a nice house in the country with beautiful views.  We are now just waiting for the final word on financing.  We will know this coming week.  If all goes well we will move soon given there are no contingencies.  Anyway - with moving so soon, it is not wise to be starting a cleanse, nor is it reasonable to expect myself to stay on a 100% clean diet while packing and moving.  So I will institute some of the following of my plan now and the rest after we are moved.

So here goes:

1.  Stop all supplements and vitamins and over the counter medications.  Exceptions include MSM powder and glutathione which my body seems to really need to keep the skin from flaring, swelling, and oozing.

2.  Start a good all natural diet - following the Weston A Price Foundation dietary guidelines (most recipes come from "Nourishing Traditions" by Sally Fallon - my go to cookbook.  No processed foods, no refined sugars or flour, no eating out, etc, etc.  All food to be organic and not tainted with chemicals, antibiotics, hormones, etc, etc.

3.  Get back to juicing - something I have done in the past and really noticed a difference in my overall energy and health.  The problem was always time - I found it hard to do all that cutting and chopping each day plus the extra runs to the grocery store each week for fresh produce.  New mission:  Shop once every other week at farmer's markets or where there is a supply of fresh organic produce.  Buy what I need for 2 weeks worth of juicing.  Spend half a day cutting and chopping it all!  Then place individual portions good for one juicing into a freezer container and place in freezer - take one out each day and place in fridge for the following day's juice.  Problem solved.

4.  Start my colon and body cleanses - the colon cleanse is 9 days and the all body one is 2 weeks I think.  I buy these cleanses from Blessed Herbs - a family owned business.  Their products are excellent and they get awesome reviews.  These are strong cleanses.  The all body one cleanses each of your organs.  When I did this 8 years ago I remember taking the lung remedies thinking I wouldn't notice any reactions given I never smoked and only had asthma as a teenager.  Well I remember hacking up gobs of really nasty stuff that was obviously caked to the walls of my bronchial tubes.  This cleanse is very potent and works very well.  But I knew my body could not handle something like that until it was mostly out of TSW.  And I believe now is my time (after I move of course).

5.  GET OUTSIDE MORE!!!  And soak up the sun naturally!  I also plan to get myself a clothesline and start hanging my clothes outside to dry in the sun.  I LOVE outdoor fresh smelling laundry!!

6.  Change to all homemade beauty products and cleaning products.  Basically trying to live as chemically free as possible!  I just received my natural living books in the mail this last week!!

7.  Exercise more!!  This will come with time - building up my endurance.  But I have 2 dogs that need more exercise - their exercise is limited to the yard given we live on a 55 mph road and there are no side roads near by.  Our hopefully soon to be new home is located on a dead end road that is long but only has 4 other homes on it.  Lots of exercise to be had there for sure!

And that's about it for now.  I truly think that once I start all this my skin will turn it's final bend into healing completely.  I have been straying too far off our clean eating due to my finger flare.  It keeps me from cooking and doing most things.  But now that it seems to be on the tail end, I can start to do the things I know I should.  I am not immune to stress flares so I know moving will cause me to flare as well - I'm just hoping that no matter what, it doesn't affect my hands.  I need my hands back!!  My frustration at not being able to do even simple tasks like open a bottle or pet my dogs has driven me to the brink of madness lately.  I have all this energy and so much I need to do - yet I'm stuck doing nothing because of this finger flare!

About healing - no one knows for sure is the common motto.  I understand this completely as I still do not understand this TSW fully.  I have healed dramatically since starting treatment for my MTHFR gene mutation, of which I am grateful for.  However I was doing so well I really thought I was going to be healed by 18 months.  But here I am at 18 months and still having these flares.  They are not horrible by any means and the pain has only returned when having the hand flare and now the finger flare.  All other mini-flares on my body have had no pain.  This recent flare I am in from stopping my supplements however has caused some burning here and there.  But I know turning away from the chemicals in my life and processed foods is the answer for me.  I realize not everyone agrees.  But given what I know about my gene mutation, I feel I am slowing my healing down by keeping all these chemicals in my life.  And we live in a very toxic world.  The more toxins we can reduce the better we will be for it.  So my new goal for final healing will be my 2 year TSW anniversary - next Valentine's Day.  It's just for my own personal need - a need to finalize this horrible dreadful process.  If I am wrong like I was last time, so be it.  I am OK with saying I was wrong.  As long as I never go back to what I was like the first 8 months of pure hell, then in all honesty I don't care if this drags on even longer than 2 years.  I'm no longer living in hell nor am I house - bound.  So it really doesn't matter.  However I like to set goals - and this is a good goal to try to achieve!  :)

As for my skin at this very moment - so much better than 4 hours ago!!!  I took my MSM powder just before writing this and already most of my itch is gone and there is no more burning anywhere.  Gotta love those methyl groups!!  :)


  1. Yay! Goals, I love setting goals. Something to aim for. Praying all goes well for everything you listed. You mentioned you got your natural living books in....are those the herbal books, or something different. Do tell :-)

    Love ya!!

  2. Which brand of glutathione are you using? I've read that Lypo-Spheric GSH and Maplewood Company Acetyl Glutathione are the only ones worth considering.

  3. Nice to see you post Tracy. I have the benefit of looking back and seeing the difference in my healing between not taking the supplements and taking them, since I was off moisturizers a long time before taking glutathione and msm, and I noticed absolutely no difference in my healing other than increased energy from the glutathione. You said "As long as I never go back to what I was like the first 8 months of pure hell, then in all honesty I don't care if this drags on even longer than 2 years". I believe that was the same time you stopped moisturizing and started taking the supplements. My "pure hell" stopped when I stopped moisturizing at month 3. Adding msm and glutathione at around month 9 made no noticeable difference for me.

    Looking back, I no longer believe that not moisturizing speeds recovery as much as I had thought, although I'm sure it does some. Same with diets and supplements. I believe moisturizing the skin during tsw is what makes the healing process so hellish for people and the simple act of not moisturizing makes all the difference in the world in the severity of the symptoms of tsw. But not so much in healing time. A good diet, exercise, supplements where needed, and sunshine are a must for good health regardless, and are likely also necessary to treat the original cause that led us to using ts in the first place.

    My conclusions are simple. People who put stuff on their skin during tsw make their symptoms far worse when they think they are making them better. Just the opposite of conventional wisdom. Moisturizing during tsw creates the hellish experience while not moisturizing makes the experience "tolerable".

  4. duyaoxiang...I use the S-acetyl Glutathione Gold by Health Naturally. I researched glutathione a lot and I found that most researchers agree that an acetyl form of glutathione is the best to get it past the stomach acids. I have also tried liposomal glutathione with good results.

    Dan...I agree that moisturizer withdrawal is the way to go. You are right that I stopped moisturizers at the same time I started my gene mutation therapy. So there was no way to know for sure which was most helpful. In my opinion they were both equally helpful - only because in the last 10 months I have gone back to using moisturizers temporarily on one area and flared horribly AND have stopped my supplements only to flare much worse as well (getting better within 48 hours of restarting the supplements). So I think it is individually based. While we have the same MTHFR mutation, I was never tested for all the other 20+ methylation genes. From reading others getting tested, there are other genes that could make healing much slower thus making our TSW healing slower than molasses. So it is possible that I need the supplements more than you if say I have 5 more mutated genes and you only have the one. The whole genetic thing is extremely complex and I can't wrap my brain around all the complexities of it. But I think the genetic factor is a HUGE component to the whole TSW thing - given the majority of people tolerate steroid creams just fine. Those of us suffering with TSW I think have a genetic component inhibiting the ability for the body to rid itself of the steroids.

  5. Hi Tracy, I agree. My skin continues to struggle after being 100% normal for two solid weeks and me going back to showering and using soap and shampoo several weeks ago. I'm starting to wonder if the Glutathione is extending my skin problem due to possibly continuing detoxification? I love the stuff and the energy it gives me but I think I'll discontinue it when I run out of what I have to see if anything changes. Do you think it could possibly extend the process due to continuing detoxification? I think the skin is the biggest organ that the body uses to rid itself of toxins so maybe? I'm so sick of this crap (tsw).

    1. Hi Dan,
      I agree that it is probably continuing the detoxification process - which is a good thing, but frustrating because of the skin issues. However I think that without it one may suffer those intermittent big flares instead of these small on and off mini-flares. I think the glutathione allows for an even amount of detoxing which to me is better than intermittent really big detoxing - which the body is going to do on its own anyway. I still think the best thing for you is a complete diet change - but we both know how you feel about that! :)

    2. Lol. How right you are! I intend to quit smoking and sugar end of September. I know both are holding me back in a serious way. I've been eating a pint of ice cream per day for months now. Have to find a balance for sure on the sugar, or quit altogether. Funny how the body craves sugar. The more you eat the more it craves it. There is no smoking in moderation for me, it's all or none. Too addictive. Godspeed in your healing Tracy. Especially your hands.