So we knew we were in for a very rough road. We had no family in the immediate area and no one to help. Thankfully our kids were older and able to manage the house and dog. My husband picked up overtime and I started my horrific journey. I was blessed though as I only suffered full body for the first 8 months. Mind you those were pretty bad months. But with my husband's insistence I went to see a naturopathic doctor and discovered I had the MTHFR gene mutation. That changed the whole path of my TSW journey. Up to that point I had had no clear moments; only a few better days. With my previous experience of TSW I knew my body didn't have clear times. But after starting treatment for the mutation, my skin went from full body flaring to only isolated areas of flaring. I was able to go back to work here and there. However since I'm a nurse, whenever my hands flared I was unable to work due to all the handwashing. But basically life was significantly better. It took time for me to feel comfortable in the heat and for the oozing to stop completely, but by my 2nd year anniversary I was almost completely through TSW. This past year I have had some dry spots and irritation and tons of hives!!! But 99% of that cleared up with a change in diet....no more dairy, gluten, or chocolate. When I do cheat I get hives or itchy dry areas. Also I had a huge flare up in my asthma due to eating dairy and gluten around the holidays. I ended up needing a shot of steroids. But thankfully had no skin issues when it wore off. My doctor really wanted me on an inhaled steroid but I have refused. I only use the albuterol as needed. As long as I don't cheat on my diet then my asthma and my skin stay good. I've really tried to stay in the TSW loop but it has been hard. I felt like I lost so much time with my kids and husband. So 2015 was the year I got my life back. It was crazy! We finally moved to Kentucky and are planning to build a house on our 68 acres and start a farm. We've had some things get in the way of our dream but we have persevered and so far things are moving along as they should.
Below are some pictures of my skin currently and also of all the things I did in 2015 to play catch up with my family!
My hands are almost completely clear - here is a left over dry area from going off my diet.
Inner arms are great - again one or two small dots from itching when eating bad.
My neck along with my hands was one of my most painful areas. My skin is wrinkly but completely clear! As is my face, my ears, my legs, etc....
Having fun at Dave & Busters! I would never have been able to go out in such a crowded public place in full TSW.
At Thatcher State Park in NY
Visiting Niagara Falls
It was cold at the Falls but still a lot of fun! Again, would not have tolerated the very cold temps on raw skin during TSW.
Visiting the Easter Bunny at the Broadway Market in Buffalo, NY
Visiting with my grandfather and aunt
Howe's Cave with my parents
Out drinking in Buffalo with my brother! We were a bit tipsy!
Trip to our 68 acres in KY in April
Eating out at Cracker Barrel in KY with hubby and family
A trip to NC to see my sister and her 8 kids - here there are only 4 of hers and my 3
Goofing off with the cousins
Visiting Virginia Beach for a few days - my Dad and Mama Jo came from Richmond to visit with us
Walking the boardwalk in the evening
Loving the beach time!
My son being goofy at a rest stop in W. Virginia on yet another trip to KY in July
Picking blackberries on our property
My goodbye party at work where I worked on/off for 4 years
Visiting Watkins Glen in NY
Visiting with my brother, his girlfriend, and their new baby
Oh look! Drinking again with my brother! This time in Rochester
Visiting Fort Niagara
A summer visit to Niagara Falls!
Another visit with my grandfather and aunt!
Visiting with my in-laws!
Out at our neighbors having a bonfire in KY!
Visiting Letchworth State Park in NY
Me on our property doing some target practice.
Seneca Park Zoo in Rochester
Christmas Village in PA
The Christmas Museum also in PA
And our first Christmas in Kentucky!!