Hello fellow TSW warriors! I am conducting a poll both here on my blog and also on the ITSAN forums. The poll on the forum got moved from the common area to the experimental area so I thought I would put it here on my blog as well (in the right hand column). I am very happy to say we have a 3rd person now with known MTHFR gene mutation....not happy for Nancy given she is dealing with TSW, but happy that she now can get treatment and possibly prevent any future physical problems that may be related to this gene mutation.
For anyone who does not keep up on all the comments, I received a comment from Nancy on my recent post...here is just a few sentences from her comment: "I have one copy of the C677T mutation and one copy of the A1298C mutation. From the online reading I’ve done, I think that particular MTHFR mutation is called Compound Heterozygous, meaning that I inherited one copy of the 677 mutation from one parent and one copy of the 1298 mutation from my other parent."
I know quite a few others who are waiting for their results. I plan to contact the NEA task force looking into TSW about the results if over 75% test positive. I think if at least 3 more people test positive, I think it would benefit all of us to have this tested on a large scale. In the forums, someone mentioned that while they were not tested, they found their loved one going through TSW and starting the same supplements as me to have an approximate 60% improvement in their skin. There are others finding improvement as well and have not been tested.
Hence why I want to start this poll. It is anonymous and going to help me determine how I proceed with finding funding for a larger scale research project. If the poll shows people are trying the active B vitamins but finding no improvement in their symptoms then it may not be worth going any further with my research. But if many people are finding improvement but can't afford to be tested, then I may be able to obtain enough funds to test 10-20 people. And if multiple people are tested and all come back positive, then a larger scale research project may be possible.
Just a side note regarding moisturizer withdrawal...it is still a hot topic in the TSW community. And here's my spin on it....I think it is necessary to at least try. And if I am right about the gene mutation being present in most people suffering with TSW, then it makes perfect sense why MW works so well. The gene mutation stops cells from being able to cleanse and repair. When we put anything on our skin, our cells have to cleanse any foreign substances. When one has the gene mutation and puts let's say Vaseline on their skin, the skin cells cannot process out the chemicals in the Vaseline at a normal rate. So the skin becomes inflamed and itching intensifies. This is my theory, but I do know when I stopped putting anything on my skin, the inflammation and itching nearly went all away. So I believe MW works well for those in TSW (and who may have the gene mutation) because the body can focus on repairing the skin cells and not having to "cleanse" the cells constantly. The energy that was being used to cleansing can now be directed to repairing and the skin becomes stronger. People who do not have TSW or the gene mutation can out lotions and whatever on their skin because the body can cleanse the cells of toxins at a "normal" rate so that inflammation never occurs. Obviously there are hundreds of other factors that can affect the skin when moisturizers are applied, but this is my theory in relation to MW AND the MTHFR gene mutation.
Thank you all for your love and support!!! And thanks for voting!!! :)