So that was a recap of what my skin is doing. As for toning things down - I will be stepping away from this blog a bit more. I was blogging nearly everyday. The past few weeks I have really cut it back some. I have seen many people who have TSW and blog, take some time away from the blogging and forum worlds in order to get a mental break from so much focus on the skin. I can understand - I did the same thing with the forums around months 3-4. I just couldn't deal with my own pain, let alone anyone else's. It is a dark place to be for sure. Then there are those who are mostly healed and are moving on with life. I fall into that category to a point. I am no where near healed. I know this. But about 2 weeks ago I "woke up". I have had a huge surge in energy and mental clarity. It made me realize I was spending way too much time online than I was with my family. I know I needed to focus on something other than my pain, and my fatigue was so severe I could barely make it through my days. Sitting at the computer was sometimes an effort. But the last 6 months not only have I been living a nightmare, but my kids and husband have suffered greatly with my indifference and severe lack of attention from me. The last few weeks, I have really focused on listening to my kids and talking much more with my hubby. My kids have really soaked up my attention - so much so it was painfully obvious just how neglectful I have been. I met all their needs - food, shelter, clothing, and love. But I was not able to do much with them. My girls are on cloud 9 today. I finally sat down to teach them how to sew. They are 8 and 10 years old. They have been begging me for the last year to teach them. No time, no patience, then I got more sick with going through TSW. Today I just took out some thread and needles and scraps of material. WOW!!! They have been sewing literally ALL day - only to break for chores and meals and school work. They have not stopped thanking me. As happy as it makes me, it also makes me cry in sadness that I have missed out on a lot of things with my kids because of my skin problem. All last year my skin was getting worse and I was working and barely functioning. So that is 1 1/2 years of missing out at least (not to mention the years I went through TSW without knowing it). I am going to be eternally grateful to ITSAN and all the founders for their hard work and dedication to this cause. I truly want to dedicate time as well, but that time is not now. Now is the time I make amends to my family. I may still be in a lot of pain and discomfort, but with my huge increase in energy, I need to take that and give it to my kids and hubby for now. I will continue to blog about once a week - maybe a bit less. But I will be praying for all of you warriors out there! I will pray you find peace and strength to get through your journey. I will pray that TSW becomes more acknowledged in the medical community so more people can heal. I pray you find what works for you to get through the pain and suffering. Hang in there as there IS a light at the end of this long, dark tunnel!
Still splotchy and red but not as bad. Notice the front of my neck is clear :)
Left arm - red and scaly and itchy
Right arm the same as left
Back of left arm - had bad "eczema" here for the 2 years leading up to TSW.
Right wrist - spreading up to crook of thumb and forefinger now.
Left wrist in same lighting as right wrist above - much less red but still broken out. Emu oil has done something here though!
Back of right knee - much less purple but my leg is now mostly red with splotchy areas. Thinking I will be having "red pants" soon though!
Right leg - hard to see the redness here, but it's pretty much all red with a lot of scratches.
Back of neck where it was a few months ago.
Right side of face a bit worse but still OK and tolerable.