Monday, November 25, 2013

Barely lifting my head up...

I ended up working 3 twelve hour shifts in a row.  That was a mistake I will not be making anytime soon - at least until my adrenals return to some semblance of normal.  I was still going to go get the IV glutathione injection done today but the nurse was not available until tomorrow....I was actually thankful for this as I was too exhausted to drive.  I also made the mistake of not checking the calendar to see when THAT time of the month was going to be.  I ended up PMSing at work yesterday and crying 5 minutes before the end of my shift.  It was actually comical and a few people laughed - which helped me to just dry up the tears long enough until I got to my car and cried all the way home.  Even with all the stress, I only have 2 or 3 small new areas of open skin.  Still no oozing which I am VERY grateful for!  I do have some burning though on my neck that just won't go away....guessing it is from the stress.  I have 4 days off now so hopefully things will start feeling better in a day or 2.

My skin is still dry and open here and there....but it still does not keep me from doing anything.  I did a lot of research the  past few days on IV glutathione and the possible side effects.  I am actually praying this might be what I need to get past this stagnant phase. I'm not complaining by any is great compared to earlier this year when I was couch-bound and couldn't function.  I feel like life is finally going on.  But my skin bothers me still to the point where I am somewhat uncomfortable on a daily basis.  I hate thinking about it.  I hate wearing turtlenecks everyday so the skin on my neck doesn't burn from the air.  Some days it doesn't, but I still wear a turtleneck to work every time I work just in case.

On the good side....the skin on my hands and wrists is so  close to being smooth!  All those thick scales are gone and it is now a very thin layer of dryness....much thinner than a few weeks ago.  There is no way to show this in pictures.  It is just a feeling I have.  Same with the bad dry patches I have had on my ankles and feet.  I also have smooth perfect skin behind my knees....I can walk without any pain at all.....I was just thinking yesterday just how awful it used to be just getting off the couch because of the severe pain I had behind my knees.

I have a lot to be thankful for!  But I will continue to persevere with finding something to help TSW.  If anything to help those behind me!!  It is a cruel existence for the time we suffer with it.

Well, off to make dinner - hoping to have the energy to load the dishwasher afterwards!  This fatigue is awful!  I pray it goes away by tomorrow and is only due to working so much in a row on top of PMSing!  BTW, I will be going to the ND office for 3:30pm tomorrow so I will not blog until later in the evening.  Will keep you all posted!  :)


  1. ummm sounds like someone should be making you dinner! Hope you managed some good rest!

  2. Oh Tracy! Sounds like your working yourself too hard! Be careful!

    Big hugs. x