"hi tracy. today I read your post about supplements. I have a (X) years old in month (X) from TSW it has been very difficult , I haver tried some supplements with him with not much luck but last week I began sulfur ionic form eidon ( very similar to MSM) and since that I noticed the oozing has stopped a lot, and the swollen also. he is in better mood, the itching is worst but the skin is improving. the other sup that i tried was vitamin E and it help soothing the skin but I think that he is more red when taking."
Just an FYI: this warrior is less than 6 months into TSW. The bolding was added by me for emphasis! As you can imagine, this has helped me to be more excited about all that I am working on. There are a few other people who privately email me about starting the supplements as well. It took me 7-10 days to see any improvement so maybe in a few weeks we will have more good news - keeping my fingers crossed!
Going to personally get the testing done. Already put a phone call into my ND today to find out about getting the gene testing. I would try 23 and me but NY will not allow me to submit my DNA from NY state to an outside lab....silly NY (I have other choice words, but I try to keep those to myself!). Will keep you all posted!!! If I test positive, then I plan to start asking for donations to have a number of TSW warriors be tested....I plan to put my money where my mouth is. I will personally make a donation of $1000 to help with this. I will petition genetic testing labs for a reduced price on that specific gene mutation. It may reduce the costs significantly if we are only looking for one gene mutation. I will also get a lawyer to draw up a release form stating anyone getting tested does so at their own risk (haha) and the results are to be interpreted only by their personal doctor. And so forth. It will take 4-8 weeks for my own results to come in....in that time I am hoping to hear back from a few who have tried the supplements to see how they work. Please keep in mind that with the variations in the gene mutation, the supplements needed may be slightly different....apparently a few of the other variations do not convert B6 and B12 into their active form as well as folic acid. Could explain why many people end up getting B 12 shots. (Things that make me go hmmmmmm).
OK - was supposed to work today but did not sleep a wink last night so hubby went to work for me (he's so sweet). I think I have taken Benadryl for too long and it just stopped working. Hubby suggested I take one of his left over valiums (from his car accident). Neither of us do well with heavy medications. So I tried 1/4 of 1 pill and was awake the whole night! It made me feel awful!!! Lesson learned! But even with no sleep my skin continues to look better! However I think my face looks a bit puffy. :p
Left hand and arm looking better!
My face feels baby smooth!!! Loving it!!!
Other than the slight dry patches, my feet feel baby smooth as well!!!
Thinking once those few sores are healed I may just go get waxed (instead of shaving) - waxing actually always kept the eczema off my legs as long as I went every 4-6 weeks.
Other than some dry skin and left over sores, there is no redness at all on either arm - redness was always evident at the wrists. No more! :) (at least for right now - always the realist!)
Top of right hand and arm - just dry where my reptile skin used to be! These are taken in the same lighting - same camera - and about the same time of day as the other pictures from the last few weeks.