Between yesterday and today - there is something definitely changing inside me. I woke up again multiple times last night itching - but little skin came off. This morning my skin is pinkish - more red than pink, but definitely less red than ever. I also woke up with little pain except some in my neck. The back of my knees have been especially painful this past month - but this morning I got out of bed and noticed I had no pain bending my knees. I have had a few breaks like this as I mentioned in previous posts- they last about 4-5 days before I flare again. But there is something very different about this break.
First I am itching really really bad! A deep bone drying itch. Had remarkably less itching with my other breaks. Also when I scratch my skin is no longer sloughing off like it has this whole 4 months.
Second, I had about the same energy as always with my other breaks. Slept about the same too. This time, I am falling over I am so tired. I felt a lift in energy when I started back with the vitamins - and I only need 2 or 3 days to get my energy levels back to what they were. But last night I slept about 7 hours - woke up, laid on the couch but couldn't keep my eyes open - went back to bed and slept for 3.5 more hours!! I know I have had broken sleep these past few days but with previous broken sleep I only needed a 1-2 hour catnap to catch up. Sleeping almost 4 more hours is craziness!
And Third, my face is significantly less dry! It has been bone dry all these months - red too, but no real excoriation or itching too much. It has been in a steady red dry state but today I had no pain moving my face or talking. The dry patches are clearing up. I did not have this with other breaks.
Oh, and fourth, the redness on my arms is not only less red, but it is now splotchy - there are actual clear skin areas on my arms!!! I never had this with other breaks - I always had redness everywhere on my arms. To see normal colored skin even in small areas on my arms is amazing!!!
All I can say is this is a nice break! I will take the excessive tiredness over pain! I am still not feeling up to par with anything. I am still using ice on my neck - while it is more clear than ever, I have a few areas that burn and itch, and the ice is the only thing that helps. Also I am still having a hard time getting my body temperature controlled - mostly too cold. I had a break from that for a while but it came back quite a few weeks ago. Was really bad last night - was freezing most of yesterday and all night. Very uncomfortable. I also still have what I call brain fog. Still not able to focus on much. I have been an avid reader since I was a young child. But since starting TSW, I have not been able to read - I am still on the same book from 4 months ago - can't focus enough to read. I try but can't get through 2 -3 pages without wondering what I just read and still need to go back and re-read. Craziness! I can read a standard mystery novel in 2-3 days. Something like "inferno" would take me about a week, but can't get past the first few chapters. Oh well, hope that comes back soon!!!
Have a good evening everyone!!
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